I'm Not Doing Well - I'm Tired

I'm not doing well. I'm currently off work because of depression, anxiety and my functional neurological disorder (FND). Last year I was off for about 5 months because of depression. In December the depression came back and has been stalking me ever since. 

Currently my mood has been weird. I'm depressed, I feel hopeless at times but at the same time I have all these ideas and things I want to do and I try to do them. But, when I do, I can concentrate. I'm really irritable and everything small and big is making me angry. I'm supposed to be using this time to get better but my brain won't let me. Sometimes I can focus and get things done and then other times I'm just not capable. It's exhausting.

I'm really tired of feeling this way. I'm angry and embarrassed being off work again. Speaking with my therapist, I know I shouldn't be angry with myself, I shouldn't be embarrassed, this is a part of living with mental illness. This isn't the first time I've been off work and it probably won't be the last. It makes me feel like a failure. The things I struggle with, the things that trigger my anxiety, bipolar disorder and FND are things that people deal with everyday. I see my friends and family deal with them no problem. I know they don't have mental illness and I shouldn't be comparing myself but my brain is being an asshole right now and I'm continually in this trap of putting myself down and feeling hopeless.

I'm scared to go back to work. My role is really stressful. The place is toxic at times. I asked to be moved to a less stressful role due to my illnesses and I was told they don't have to accommodate me because it's just stress. I said it's more than stress and that my mental illnesses and neurological disorder are being triggered by the work I do. They didn't care, all they heard was stress and told me they don't have to accommodate me. 

You might be thinking, they can't do that. That's wrong. You need to fight back. The problem is I don't have the mental capacity to do so. I'm tired of fighting. I'm tired of advocating for myself. I'm tired of doing the right thing and having it used against me. I'm just really fucking tired. 

I know I should be looking for work elsewhere. But like everything else I find it very overwhelming. I pull up job postings and I get overwhelmed. The thought of reading the job posting, writing a cover letter, changing my resume makes me want to run and hide. I think too far forward. I don't think about just applying for the role, I think about how I'm going to have to start over at a new company. Meet ne people. Learn new systems and tasks. Worry about doing a good job, making a good impression. It's my anxiety. It takes over and I struggle to stop it. People always say "one step at a time" but anxiety likes to screw with me and be like "lets think about everything that could be overwhelming and everything that can go wrong."

I also have the stress of applying for disability benefits through the insurance company. Since I was on short term disability last year, they are saying I exhausted those benefits and I now have to apply for long term disability. The catch with that is, there is a pre-existing clause. If I was being treated for my condition 90 days before I was eligible for benefits, they can deny my claim. I've been treated for mental illness since I was in my 20's, of course it's pre-existing. So I am just sitting here waiting for them to deny my claim. I'm running out of money. If they don't approve me, I will have to go back to work, which I'm not healthy enough to do. If I don't go back to work, I will run out of money and not be able to pay my bills. I'm fucked. 

Getting help, to get health for mental illness shouldn't be this difficult. I'm trying to get healthy so that I can work. But every step is made so difficult. I've been off work for five weeks now. Five weeks of not being paid. I'm fortunate I have savings, a lot of people don't. But it's still stressful because I don't have a lot of savings and I'm going to run out of money soon. 

I'm tired of struggling. I'm tired of fighting to be healthy. I'm tired of trying to do the right thing. I'm tired of trying to advocate for myself. 

I'M TIRED

Bi-Yearly HIV Appointment - Abnormal cells, medication change & more!

I had my bi-yearly appointment with my HIV doctor yesterday. My appointment was in person, not a telephone appointment. At first I was annoyed by this, I didn't want to drive all the way downtown. However, getting to see my doctor and nurse was great. They are both so kind, friendly and energetic. It was also good to get out and have a regular appointment which provided some normalcy during these uncertain times.

My viral load is still undetectable woot woot! We are going to switch my medication from Triumeq to Dovato. Apparently,studies show that three medications in one aren't needed for people who's HIV has been stable. I'm down for that! It's still only one pill but the less medication I need to take feels like a good thing since, I take quite a few for different issues. 

Unfortunately my liver enzymes are still high. Three years ago my family doctor sent me for an ultrasound, I was told I have the beginnings of non-alcoholic fatty liver disease. Well, three years later my enzymes are still high so I have to go for another ultrasound. Thankfully I don't have to wait too long, my appointment is on August 24th. I've been trying to eat healthy, the struggle is real.

I LOVE fast food. My Mom barely cooked when I was a kid, so we ordered out a lot. Our fridge and pantry were always full, my Mom bought healthy things but when we had pizza pops and wagon wheels in full stock all the time and she was at work all the time, choosing healthy was rarely a thing. My poor brain has been loving fast food since I was a kid. When I'm happy I want fast food. When I'm sad, I want fast food. When I'm angry, I want fast food. 

I've tried over the years, many, many, many times to stop eating fast food. My doctor was like you need to eat healthy, exercise and lose weight. I said "I'm trying." I've been going for long walks. I've been increasing my fruits and veggies but sometimes the cravings for fast food are so intense. Lately I've been working on self-compassion and working on my anxiety. I keep reminding myself every time I try to quit fast food cold turkey, I always crash. So I am trying to make small changes and increase them over time. I rarely drink alcohol anymore. Last year I decided to limit drinking alcohol to help my physical and mental health. I realized even if I just have a couple of drinks, my mental health would be impacted negatively because of it. 

I also have to go see a gastroenterologist because my anal pap smears keep showing abnormal cells (atypical squamous cells of undetermined significance - ascus). A few years ago I had to have some of the cells removed for a biopsy (side note: the doctor accidentally shocked my asshole and then I awkwardly had to figure out how to put a maxi pad on - (I'm a guy) - with no help from the medical staff, I realized it attached to the underwear haha). Thankfully the biopsy didn't come back as cancerous. Fingers crossed that will be the result again.

I also have to go for tests for blood sugar and cholesterol because I haven't had those done in quite awhile.

It was quite a jam packed appointment, usually I go in and it's:

💊 Any issues taking your medications? / How many doses have you missed?

💊 Your viral load is undetectable

💊 Your shots are all up to date

💊 Here is your prescription, see you in 6 months

I am thankful that I have an awesome doctor and an awesome nurse. I am thankful that anytime I've needed a shot, the cost is covered by our healthcare. I am thankful when I've needed a procedure, I didn't have to worry about going into health care debt, that our taxes go to our healthcare. I am thankful that I can discuss my HIV and my other health issues and needs with my family and friends.

WHAT! Another diagnosis?!

I stayed in bed most of the day. I feel like garbage. I finally got out of bed around 6 pm, that was to answer the door to obtain my McDonalds I ordered. I ate too much because I'm depressed. I'm trying not to beat myself up. It's hard. I'm really angry with life always feeling so difficult. Angry I have so much wrong with me.

Recently I was diagnosed with FND - Functional Neurological Disorder. For about a year and half I think (if I think back, my migraine stroke symptoms in 2012 could be a part of this), I have been having involuntary muscle movements.

At first my family doctor thought I was having seizures and told me he was going to have my drivers licence revoked. I cried in my car. Thoughts of how much more difficult my life was going to be because I wouldn't have the freedom of driving - the transit system here isn't great. Thankfully, he consulted with a  neurologist first and called me and told me the neurologist didn't believe I was having seizures and didn't recommend revoking my drivers licence. He said he was going to refer me to the movement disorder clinic, it could take a year or so to get in. Wait. Waiting is all I could do.

My symptoms were getting worse. They were happening almost everyday. Somedays worse than others. My eyes will clamp shut. My jaw will contract to the left or right. I will twitch throughout my body. I will lose my balance as I walk. A few times I had full body episodes. Twice, I had seizure like episodes but I was fully aware of it, I didn't lose control of my bodily functions. I couldn't stop them. After they finished I felt really out of it. Couldn't think straight and felt really tired. A couple times I got up off my couch and as I went to walk my muscles starting contracting. My body was being ridiculous - I felt like a marionette, my limbs moving around, out of my control.

I made an appointment with my family doctor to let him know my symptoms were progressing. He called the neurologists office and within a couple of days I got a call, they had a cancellation and  they could get me in a few days later. That was fortunate, we all know seeing a neurologist can be a long wait. This was my 1st appointment with the neurologist. He did a bunch of movement tests and said he felt what was happening was psychological. He prescribed me clonazepam and told me to take .5 mg a day, if after 3 months my symptoms seemed to have somewhat improved, to take the medication twice a day. I ended up going to twice a day and my symptoms improved quite a bit.

A week ago I had a follow up appointment with the neurologist. He was happy to hear that my symptoms were improving. He said since the medication was working that showed him that it was on the psychological side. He stressed that doesn't mean I am making the symptoms happen, it means they aren't caused by a neurological disease but the symptoms are real. He told me to check out the website fndhope.org and that if my symptoms do get worse, to call his office to see him again.

My symptoms have been shitty this weekend - but I'm not surprised. I had a stressful week at work and realized how much I hate my job. The workload is insane, my manager is toxic and I left a toxic job believing this one would be better. On top of the stressful week at work, I get diagnosed with yet another illness.

I have HIV, Asthma, IBS, Anxiety, Bipolar, Borderline Personality Disorder, and now Functional Neurological Disorder. Oh, I also have a Hiatal Hernia, Tinnitus and sometimes Gout - might as well list them all right? Haha.

Today, I stayed in bed most of the day, ate a lot of McDonalds and then put my ass on the couch and watched t.v. And you know what, I needed today to be a depressing day. I needed today to be a woe is me day. It's been a rough week and it shouldn't be unexpected that I feel overwhelmed and sad.

The Happiest Depressed Person I Know

My previous family doctor was the first person I told I was depressed. He put me on Zoloft and I would continue to see him until he retired several years later. (It would be a few years later that I would be diagnosed with bipolar and realized Zoloft was a bad idea. Oops.)

He had a wonderful nurse that worked for him (all of the staff were amazing) and she once told me "you're the happiest, depressed person I know." She said this because even though I was diagnosed with depression and even if I was in an episode of depression, I would always say hello with a smile on my face. I was always friendly, laugh if someone said something funny and crack my own jokes as well.

I've thought about that statement off and on over the years. Originally, my first thought was "I have to be like that, it's my way to survive. I'm putting on a brave face."  

But that's not true. I've been thinking about that statement recently, because I've been in an episode of depression and I've realized in those moments, when I'm being nice to people, when I'm laughing, making jokes and so on, it's genuine. I'm not acting. Depression conned me into believing I was putting on an act.

Lately I've been very depressed. One moment, I can be cracking a joke, dancing around and then when that stops "the weight of depression returns."  Thoughts of hurting myself or moments of binge eating return. The laughter, the joking, the interacting with people, doesn't get rid of my depression, it temporarily pauses it. Then the depression rushes back in like one of my IBS attacks, fast and furious.

It's amazing how depression can be so deceptive. My depression loves to tell me in those moments when I'm interacting with people, laughing, helping, whatever it may be, they are fake, they aren't real. Only the depression is real, everything else is an illusion.

When I remembered that statement and had the idea to write this post, I realized, that's bull shit.

It's not an illusion. It's the depression part of my brain trying to win over the healthy side of my brain. It's the depression part of my brain trying to mess with me. Telling me lies. Making me believe that I can't actually achieve feeling good. But, it's bullshit. Those moments are genuine, they are real and I need to remind myself of that. I need to keep reminding myself to try and hold the depression at bay. 

Depression is a crook, it's trying to steal my good moments, it has a strong front and it's relentless. To build up the defences and create a strong front for the good part of my brain, I need to allow myself to acknowledge those good moments are real, they are genuine and they can continue to happen. 

So when an employee tells me "I love how excited you get about things", I am going to tell myself "that statement is true and I bring joy to others" instead of "they are trying to tell me I am over the top and they don't like me."

When someone tells me "you are always so friendly when I see you", I am going to tell myself "I am friendly to others and it makes a difference" instead of "they think I'm miserable and I need to be happier."

When someone tells me "I really appreciate your help." I'm going to tell myself " I was helpful, I am knowledgeable" instead of "I'm stupid and they feel bad for me, they are just being nice."

I am going to allow myself the opportunity to acknowledge the truth. It won't be easy. At times, depression will do what it does best, attack me, to bring down my defences. 

There will be times where depression is an A+ con artist that pulls one over on me. My challenge will be, when that con artist does pull one over on me, not to take the blame. It's not my fault. Depression is a thief, a con artist, a liar, a manipulator and more. 

I can be happy and depressed, that is valid and I will make the effort to acknowledge the happy moments and when the negatives ones creep through, I will attempt to make the effort to wade through the shit and find the truth. 

And if I can't wade through the shit, then at the very least I need to know, it's not my fault, the fault belongs to depression. 

Depression is not me, it's a separate entity that has squatter rights in my brain. Get the fuck out, you have overstayed your welcome, you weren't welcome in the first place.

Forgiving Myself - A letter from my adult self to my adult self

I've been struggling lately. I'm depressed. In my last post, I wrote about an experience I had at the bathhouse. This most recent experience made me re-live being raped there. I left the bathhouse upset. Instead of blaming the guy who didn't want to accept my no, I blamed myself. I told myself that it's my fault that this happened to me. It's my fault because I'm a whore for going to the bathhouse. It's my fault because I sleep with too many guys, I'm disgusting because I use sex as an escape.

In my last therapist appointment I brought up how I was feeling. I got really upset. I was shaking because I was so angry with myself. I wanted to hit myself I was so angry. I talked about how I keep watching more extreme porn, using bigger sex toys and having so much sex and making more extreme sex choices because it's like trying to achieve a high. I'm trying to numb how I feel. I know the numbness from the sex is only temporary but it's better than nothing. After my appointment, I realized something. I need to forgive myself.

I previously wrote a letter to myself, my child self writing my adult self, forgiving me for everything I had been through and forgiving me for how I felt. I realized I needed to write a letter from my adult self to my adult self for what I've been through as an adult, choices I made to help me survive my feelings.

The letter:

You're hurting, a lot. You're sad. You're angry. You feel ashamed. You blame yourself. You're disgusted with choices you've made. Sexual choices. You've been chasing a high to avoid how you feel. It hasn't worked. It just makes you feel worse. You keep making extreme sex choices because you feel lonely. You feel empty. Because it takes away the pain even knowing it's only temporary.

I forgive you. I really do. This isn't your fault. You do it because you don't know what else to do. I forgive you. You do these sexual things because of your past traumas. Being raped, having an alcoholic, angry father. A sister who committed crimes. Being bullied. Feeling abandoned. Feeling unwanted. Feeling unloveable. Feeling worthless. Feeling like an inconvenience.

Watching porn, using large sex toys. Going to the bathhouse and having sex with lots of guys. Putting on a blindfold and letting guys fuck you. You did all that because you blame yourself for everything. Because of what you've been through. I forgive you. You are not worthless. You're not an inconvenience. You're not unloveable. You are worth everything. You are loveable. You are worth kindness. You are worth respect.

You don't need to be extremely sexual. You don't need to escape your feelings anymore. You are capable of managing your feelings. You are capable of changing your circumstances. Your family loves and cares about you. Your friends care about and love you. I care about and love you.

Your past doesn't have to weigh you down. Your past doesn't make you less than. You are worth loving. I'm excited for you to accept and move past this. You've been surviving for so long. You have permission to live your life. You deserve happiness. You are forgiven. I love you.

Overwhelmed with Feelings

Fuck. The darkness is back. It's heavy, it's exhausting, it won't leave me alone. I went grocery shopping today. It felt like I was trying to complete a marathon. I kept wandering around aimlessly, forgetting what I needed. A mental fog slowing me down, my brain tingly with confusion. There was one point where I wanted to give up shopping for groceries and just sit down in the aisle. I didn't. I pushed through and got back to my car. I sat in my car for a few minutes, I was so exhausted.

I tried to give myself credit. Credit for getting out bed and showering. Credit for buying groceries and putting them away when I got home. I know those are accomplishments when I'm feeling like such garbage but the negative talk takes over. I start telling myself, people do these things everyday. They are expected of us. People do these things with kids and other obligations. I'm pathetic. I'm not, but I am, but I'm not. Fuck off negative thoughts. Fuck off.

The darkness, the depression, the negative thoughts are because I've been avoiding something. My previous post was about writing a letter to the man who raped me at the bathhouse. I was finally starting to free myself of that. It wasn't consuming my thoughts, every minute of every day anymore. I was breaking free of it's grip until I was at the bathhouse a couple weeks ago. I was laying on my stomach, this guy was fucking me. I wasn't enjoying it and I wanted to take a break. I said "I need to take a break." He responded "ah, really?" in an annoyed tone. "Yes, I want to take a break."

When I tried to get up he wrapped his arms around me, his arm pressed against the front of my neck and said "shh, shh, just lay there, lay there, it's okay, it's okay." I froze. I wanted to move, I couldn't. My brain, my body, wouldn't let me. When I was raped, I was also on my stomach. I said I wanted to stop. When I tried to get up, he pushed me back down.

As I laid there with this guys arms wrapped around me, his arm on my neck making it uncomfortable to breath, I was frozen. I wanted to yell. I wanted to get up. I couldn't move. I wanted his dick out of me. Instead, I laid there, replaying what happened to me the last time I said no. Remembering when I said no and tried to get up, the guy pushing me back down. Remembering when I tried to get loud, the guy putting his hand over my mouth and biting his hand didn't stop him. Not just remembering but reliving it.

This guy kept kissing me and telling me not to move, to just relax, to wait a moment, saying to me "it's okay." I finally was able to speak, I said "I want to stop, I don't want to do this anymore." He said "ah man!, fine!, lame!"in an angry tone and finally got off of me, got out of me. I laid there, unable to move, waiting for him to leave the room. He slowly wrapped his towel around him. His tone changed. In a friendly tone he said "okay, well have a good one, oh, oh, here's your lube, don't want you to lose it." After what felt like an eternity, he finally opened the door and left.

I stayed motionless, thinking to myself, how many times is this going to happen? I thought about the past, when I wasn't comfortable saying no, before I had the courage to withdraw consent, before I was able to assert my needs. I thought about all the times I wanted to say no and I didn't. The times I wanted to stop but I let the guy finish because I didn't want to make him mad. If I would have been able to say no, how many of them would have kept going?

(On a side note, I am listening to music while I write this and "Do what you want with my body" by Lady Gaga came on - bad fucking timing).

I know I shouldn't blame myself.  I shouldn't blame myself but I can't help it. I keep thinking, that it's my fault, my fault because I'm a slut for going to the bathhouse. It's my fault because I let him climb on top of me and fuck me, without even saying a word, without getting his name. I keep thinking about what a whore I am. I'm angry. I'm hurting and directing it all inward.

When these negative thoughts manifest, I become overwhelmed. I want them to stop. I keep imagining myself walking into the bathroom, grabbing a razor blade and sliding the blade across my skin. Anything to make the pain, the feelings stop. I would rather the pain of the blade than the pain of what I'm feeling.

It's been almost a couple years since I've cut myself. The last time I cut myself, I cut the word whore into my left thigh and the word faggot into my right thigh. The urge to do so again is strong, so strong. I resist because I don't want the scars. I don't want the daily reminder of what I did. I am lucky, the cuts healed last time, what if they don't this time? Instead of cutting, I eat. I eat too much. Too much fast food. After I gorge, I hate myself and I want to cut myself.

Instead of cutting myself, I am writing. I am talking about what happened. Sharing my feelings in the hopes of lifting some of this weight holding me down. Letting it out. However,

I'm... I'm... just so tired of trying to survive. When will I feel like I'm living and not just surviving? Will that ever happen? Is it possible?

A Letter To My Rapist

I was raped about a year ago, it happened at the bathhouse. In the last year, I thought that I had dealt with it. As one year since it happened came closer and closer, I kept thinking about it more and more. I kept replaying what happened in my mind, over and over. Whenever I would think about it, I was consumed with guilt and sadness.

In my last couple therapy sessions, I kept saying I wanted to write a letter to my rapist to work through what I was feeling. I did this previously, writing a letter to my dad and it worked well. Of course, I love to procrastinate and keep those feelings bottled up, so I kept putting it off. Well, finally, today, I wrote that letter. It was hard.

At one point I was so angry I punched my table, the next moment I was sobbing uncontrollably. I'm glad I finally did this, I needed to write that letter, get those feelings out. I feel like I ran a marathon but I also have a feeling of letting go. I wouldn't be surprised if I wake up tomorrow and the lower back pain I have had for over a month is all of a sudden starting to feel better. Here is the letter I wrote:

Fuck you! You rapist piece of shit. I said no. I told you to stop. I think about that night, all the time. I replay it over and over in my mind. Sometimes I wonder what I could have done differently. I get angry when I wonder this. I didn't need to do anything different. You did!

You need to not be a rapist! When someone tells you to stop, you need to fucking stop! What? Were you annoyed that you weren't going to get to cum? FUCK YOU! You know what's worse than you not getting to cum?

Having you on top of me, your dick inside me, while you say no, when I asked you to stop. When I tried to get up and you pushed me back down. When I tried to yell NO louder and you put your hand over my mouth to silence me. I bit your hand, did that stop you? No, it didn't. You kept raping me. I withdrew consent and you didn't give a fuck. I was an object for you to use.

Everything started going dark. I remember thinking to myself "I can't believe this is happening." I could hear others in the bathhouse, chatting, having sex. Here I was, being raped, with dance music and sex noises as my soundtrack. I started checking out, going to my safe place, when all of a sudden, I thankfully got angry. I yelled "I fucking said no! Get off me!" I hit you on your side, I pushed back as hard as I could and threw you off me.

You landed on the floor, looking scared and saying "sorry, sorry, I didn't meat to" GUESS WHAT? YOU FUCKING MEANT TO! YOU RAPED ME! How dare you be fucking scared, you piece of shit rapist! I said no, several times. I asked you to stop.

You said no to me. You pushed me down, you covered my mouth. You knew what you were doing. After you left my room, I sat there, naked, alone, scared, crying. I thought "do I report this?" Then I imagined telling a police officer that I voluntarily went to the bathhouse. That I consented to sex with you. That I withdrew consent, but I was worried they would view me as a slut for being at the bathhouse. I worried they wouldn't take me seriously.

I've held this in for the last year. It's been eating away at me. That's on you! You raped me! You made me feel less than, scared, alone, sad, angry. I've felt guilty that you may have done this to others after me. Fuck you! I'm returning that guilt, that anger, that sadness back to you.

It's not my fault. You are responsible for you. I'm not allowing you to control me anymore. I did nothing wrong. It's not my fault.